Questions Before Getting Started

Who are your doctors?

CareND is Synapticure’s medical group that is composed of nurses, licensed clinical social workers, genetic counselors, and board-certified neurologists, that work together as a team to help guide the care plan in conjunction with your current care team, including those academic medical centers that we partner with. Each of our doctors have gone through a rigorous selection process to become a part of CareND and have committed to placing patients first. The CareND team will provide guidance and add in-depth medical decision making to your ALS journey.

What states do you serve?

Synapticure and CareND currently has licensed providers in the following 41 states: Alabama, Arkansas, Arizona, California, Colorado, Connecticut, Florida, Georgia, Idaho, Iowa, Indiana, Illinois, Kansas, Kentucky, Louisiana, Massachusetts, Maryland, Maine, Michigan, Missouri, Mississippi, Montana, North Carolina, New Hampshire, New Jersey, New Mexico, Nevada, New York, Ohio, Oklahoma, Pennsylvania, Rhode Island, South Carolina, Tennessee, Texas, Utah, Virginia, Vermont, Washington, Wisconsin, West Virginia.

If your state is not among the states our teleneurologists serve yet, sign up here for email alerts about our expansion.

How much does Synapticure cost?

There is no cost to sign up for Synapticure and we provide our Care Coordination services, medical records gathering, creation of a medical summary and test list, clinical trials education and support, support being referred to an ALS specialist, at no cost to help organize and support your care journey.

There may be a fee for services, genetic counseling and neurology visits, provided by CareND.

Our care coordinators will provide you with a cost estimate ahead of your services.

If you do not have health insurance or want to pay out of pocket for the visit, we will inform you of the cost prior to the visit.

What insurances do you accept?

CareND providers are contracted with the organizations listed below.

  • Medicare
  • Blue Cross Blue Shield of Alabama, Arizona, Georgia, Illinois, Louisiana, Kansas, Mississippi, Montana, Pennsylvania, South Carolina, Texas, Washington, West Virginia, and Wisconsin

If your health plan is not on the list, CareND will submit a bill to your plan as an out of network provider.This information is updated periodically and is subject to change. Your benefit coverage for care provided by CareND is determined solely by your insurance company and is based on the provisions of your specific medical benefit plan.

What if I already have my own doctor that I like?

Our goal is to ensure that you have the best care possible while eliminating so many of the burdens that are placed on you today. So, if you have your own doctor, you can keep them and we will work with them as part of a team.

Is this a concierge service?

The entire premise of Synapticure is that we must provide access and level up care for all people living with ALS regardless of where they live, what their race is or how much money they earn.

What makes this different from telemedicine?

Telemedicine is a key part of our services because it brings care into peoples’ homes. If ever there was a disease that could benefit from care online and in your home, it is ALS as the disease makes travel nearly impossible for many people living with ALS. 

However, Synapticure is more than just telemedicine. It also brings together all the key elements of a best in class care process that most people living with ALS never get access to through a full stack teleneurology platform. With this platform we aim to give every person living with ALS a clear understanding of their unique subtype of ALS and decision making support for clinical trials or therapies that are based on their subtype.

Synapticure has our own teleneurologists as well as nurses and care coordinators who use telemedicine to see patients from the comfort of their own home. We pair that with collaborations with ALS clinics and neurologists using telemedicine to provide in person support and visits when needed. Synapticure’s care model 1) helps expand care to the people living with ALS right now who aren’t able to see an ALS specialist 2) improves care and testing for all people living with ALS and 3) both increases the capacity of ALS specialty clinics and helps speed recruitment for clinical trials, benefiting patients, ALS clinics and organizations who are developing tests and treatments for people living with ALS.

How will Synapticure keep my data safe?

We take the security of your data very seriously. We follow all federal and state laws to ensure your information is safe. For example, we maintain compliance with the HIPAA Security Rule, which sets out important administrative, physical, and technical safeguards for your Protected Health Information. For more information about the steps Synapticure takes to keep your data safe, please see our detailed Privacy Notice.

Will Synapticure share my information?

Synapticure will never share your identifiable information with any third party unless you authorize us to. We plan to use aggregated, de-identified data in cooperation with research partners like molecular laboratories, pharmaceutical companies, and academic research institutions, in order to help advance ALS care for patients, and to support researchers and scientists who are working to develop new treatments for ALS and related neurological disorders. To protect your privacy, we remove from the data any information that could identify you (we “de-identify” it); we then combine the data from many patients together (we “aggregate” it) before sharing. Many of us are patients and researchers ourselves; we know first-hand just how seriously the lack of such data today impedes the ALS research community. So we have made it part of our mission to help remove that impediment, in order to clear the way to better care–and eventually to cures– for everyone.