How we personalize care for Parkinson's Disease

Parkinson’s Disease (PD) research and the technology to care for patients have advanced rapidly in recent years. Despite this, too many people living with PD still struggle to access care, testing, treatments and clinical trials. It’s time to leverage the advances in science and technology to make medical care proactive and personalized for all people living with PD.

We built Synapticure to provide personalized care to people living with PD in the comfort of their own home. This means developing a personalized care plan for each patient through cutting edge testing and consultations with specialists at Synapticure and, if it is needed, movement disorders clinics.

This is how Synapticure works.

Telemedicine at home

Synapticure uses telemedicine to make life easier for people living with PD. The stresses of the pandemic only add to the burden of traveling to an in-person clinic visit with a disease that can affect your ability to walk, talk and travel. Certain elements of PD care need to be handled in person and that is why Synapticure will always partner with a doctor or clinic that you see in person. That said, recent advances in technology and science have made it possible for much of your care to be handled remotely from the comfort of your home. Synapticure’s team of neurologists come from top movement disorders clinical training programs and are available when you need them for telemedicine appointments. Moreover, our doctors partner closely with the rest of your care team - whether that’s a local PCP, neurologist or PD specialist - to make sure our care is well-coordinated with them and that we’re all on the same page. And if you are not seeing a PD center of excellence and want to, or want to supplement the care you’re currently receiving, we will work with our network of partners to get you seen as quickly as possible.

Care coordination

In addition, from the moment you enroll, you will be paired with an experienced Synapticure Care Coordinator who will help you navigate every step of your journey and every facet of the care system. People living with PD often see multiple doctors and the administrative burden of coordinating across those care systems inappropriately falls on the patient and their families. Our care coordinators take this burden of paperwork and organizing specific PD resources off of you in order to truly provide a continuity of care. We bring all of your medical records together and organize them in a way that makes sure you and your care team have a clear view of your care goals, what is important to you, what you have been tested for, what medications you’ve tried, and what might be missing. In addition, our Care Coordinators provide you with support in advance of, and in between appointments, so you never feel alone. We will do the homework with you so you always feel prepared.

Genetic testing & counseling to understand PD

With Synapticure, every person living with PD can have the opportunity to determine if there are any known genetic causes for their PD. Our care coordinators work with you, our genetic counselors and our partner genetic testing labs to seamlessly and quickly get you the testing and pre- and post-test counseling you need to understand if you have a genetic subtype of PD. Even if you don’t have a known genetic mutation, Synapticure and our partners will periodically reevaluate your genetic test results alongside your medical history to provide you with updated clinical trials and other treatment options. Synapticure patients with other diseases such as ALS have already found previously missed genetic variants as a result of our care program that made them eligible for a currently enrolling clinical trial.

Evan Cathey, Synapticure Patient

Precision care

PD is an extremely heterogeneous disease. Every year we are learning more and discovering new genes and pathways linked to PD that could be more effectively addressed with targeted therapies. Our goal is to help get you personalized care plans that take advantage of the latest advances the field has made. This is how Synapticure works.

We've got you covered

If you would like to enroll as a patient under Synapticure and you live in one of the following states, please reach out to your care coordinator and we’ll ensure we get you scheduled as soon as possible. Even if you’re not in one of the below states, you can sign up today as we are working to expand to all states as soon as possible.

We are currently seeing PD patients in the following states: Alabama, Arizona, Arkansas, California, Colorado, Delaware, Florida, Georgia, Hawaii, Illinois, Indiana, Iowa, Kansas, Kentucky, Louisiana, Maine, Maryland, Michigan, Minnesota, Mississippi, Missouri, Montana, Nebraska, New Hampshire, New Jersey, New Mexico, New York, North Carolina, North Dakota, Ohio, Oklahoma, Oregon, Pennsylvania, Rhode Island, South Carolina, South Dakota, Tennessee, Texas, Utah, Vermont, Virginia, Washington, Washington DC, West Virginia, Wisconsin, and Wyoming.

"Synapticure has been a fantastic ally in my quest to understand and fight ALS. They provided access to advanced genetic testing and counseling that surpasses what my clinic offers. Their care coordination staff is amazing, helping me organize and interpret my test results, connecting me with academic specialists to provide individualized answers, and really listening and responding to my never-ending stream of questions."

Synapticure Patient

“Synapticure has filled me with hope. No other doctors I’ve seen have explained to me the value of genetic testing.”

Synapticure Patient

"My Care Coordinator is fantastic. She is informed, thorough, and most importantly *responsive.* That focus makes Synapticure special, and my Care Coordinator is a big part of it."

Synapticure Patient

I cannot thank you enough for what you have already done for my father; from your kindness with onboarding him, checking in with him, providing him with so many resources and getting him set up with genetic counseling so quickly. I will forever be grateful for the Synapticure Care Coordination team.

Synapticure Patient

“My care coordinator recommended that I look into a number of clinical trials to see if I would be a good candidate. She provided me with enough information that I felt comfortable approaching my Neurology team at my medical center about it, and we are currently investigating which would be the best fit for my current condition.”

Synapticure Patient

Thank you for persevering on my behalf [to refer me to an ALS specialist]. Your hope keeps me going! Thank you for being there for me.

Synapticure Patient

Benefits Verification Request

Interested in seeing one of our neurologists, but not sure what it will cost or if we accept your insurance?  Complete the form and we provide you with a personalized estimate of the out-of-pocket cost.