Synapticure provides compassionate, personalized care for individuals and families living with Amyotrophic Lateral Sclerosis ("ALS") also known as Lou Gehrig's Disease. Our team of expert clinicians and care coordinators ensure every patient has access to the care they deserve.
Designed by an ALS patient and caregiver to accelerate access to better treatments and improve care for every patient living with ALS, Synapticure is changing the experience for the patients we serve. Covered by most insurance and treating patients in all 50 states, our telehealth clinic works with you and your existing care team seamlessly, from the comfort of your own home (or when you’re on the road).
Every ALS patient needs a dedicated ALS clinician in their corner. Synapticure’s neurologists come from top clinical training programs with expertise in ALS. We coordinate care with your local physicians to ensure you get the care and cutting-edge treatments you need—right when you need them. No more long wait times, no more searching for answers—we’re here to be one step ahead for you. Read more about our doctors here.
As a Synapticure patient, you will be paired up with a Care Coordinator who will help you navigate every facet of the care system. Our experts have deep professional and lived experience with ALS, and are here to take the burden off of you—no matter what you need. From choosing Durable Medical Equipment like power wheelchairs, communication devices and respiratory support equipment to coordinating physical, occupational and speech therapy; and addressing other healthcare needs like a handicapped parking application, your Care Coordinator is in your corner.
Our telemedicine platform lets you have your appointment from anywhere—right from your phone, tablet or computer. With our virtual approach, you can also easily include family and caregivers in your appointments, regardless of where they live or work. This provides family members with the ability to be more proactive in your care plan, to ask any questions they may have—even If they can’t travel to your in-person clinic appointments. Because our neurology team is licensed in all 50 states, we can also coordinate your care with your local neurologist who is not able to see you while you travel out-of-state.
At Synapticure, we take a proactive approach to ensuring every patient is informed about clinical trials across the country. Because the time to qualify for clinical trials in ALS is limited by the date of your symptom onset—not date of diagnosis—promptly learning about your clinical trial options is critical. Your Synapticure neurologist and care coordinator will review your medical history, talk to you about your priorities, discuss the science, and overview the risk-benefits of various trials. And if you don’t qualify for clinical trials, we will talk to you about the options for Expanded Access aka Compassionate Use.
We believe everyone with ALS should have access to genetic testing, regardless of family history or insurance coverage. On average, at least 37% of Synapticure patients were offered genetic testing by their prior physicians. Our proactive approach to genetic testing has changed outcomes for our patients. For example, genetic testing uncovered previously missed genetic variants that made several of our patients eligible for clinical trials, the Tofersen expanded access program, and the newly approved Qalsody therapy. Our care coordinators work with specialty labs to quickly ship you at-home genetic testing—at no cost. If someone in your family is a carrier of a genetic mutation causing ALS, other family members may also qualify for genetic counseling and free genetic testing.
Our team understands the burdens our patients face in getting insurance coverage for the medications and equipment they need, and we ensure every Synapticure patient has rapid, expert support navigating the system. From supporting your next Open Enrollment decisions to ensuring you get rapid prior authorizations on new medications, your Synapticure team will get what you need done, quickly. Check out this blog from our medical assistant, Devin, talking about why the prior authorization process is unique in ALS.
Schedule a consultation with one of our Care Coordinators
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Synapticure itself is a Godsend. They have done more for me through telehealth than the clinic did in a year of in person visits. Synapticure takes care of all the legwork needed to do anything from getting a new powerchair to getting new medication. Actually prescribed me a medicine that I should have been on from my diagnosis. They are amazing.
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Everyone is friendly and caring. The neurologist are great. They listen to what you have to say and help you anyway they can.
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Great people all around. Taking great care of pALS and cALS. Predictable access and patient-centered support using a solid telehealth network.
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Extremely well organized and professional at each step of the process; intake, physician contact, follow up.
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Thank you for the access to genetic testing! It was discovered that I had a mutation of the SOD1 gene which has completely changed my treatment.
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We love the kindness and care from Rebecca and Dr. Jaimie Hatcher-Martin.Great service offered to ALS patients as well as Compassionate, help and understanding!!!
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Those we have worked with are an extremely professional and empathetic group of people.
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I have been more than pleased with the care I have received at Synapticure and am so grateful for the hard work so many have done to bring ALS patients hope.
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The willingness of my neurologist to prescribe off label has given me new hope in my fight with ALS. It allows me to try something new while waiting for a clinical trial. For anyone fighting ALS , time is of the essence and the speed that Synapticure is something other providers should strive for. Thank you for giving me hope!
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Doctor took her time with us and it was a most welcome change to what we have been accustomed to
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We've struggled getting responses and support from other clinics about new drugs; meanwhile, Synapticure has been extremely responsive, and as a result, we have just started on Relyvrio. Additionally, Becky and the Synapticure team have been great! Thanks!
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Crystal has been great and easy to work with. Thanks for offering this service.
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I have a great experience with Synapticure. Michelle and Dr. Faber are wonderful.
Everyone from synapticure has been VERY helpful; from Eva and Dr. Jamie Hatcher. They are so kind and make you feel comfortable. They never rush you and they get things done so quickly.
