How Long Can you Live with ALS?

Patients with Amyotrophic lateral sclerosis, often known as Lou Gehrig’s disease, live on average two to five years from their symptom onset. That being said, every person living with ALS is unique and depending on the variation of their disease, life expectancy may be longer than 5 years and in some rarer cases, over a decade. 

Synapticure’s team of neuromuscular experts can evaluate their patients’ clinical constellation of symptoms and exam findings, and are able to help patients understand what their prognosis may look like. Our team can support you in a number of ways depending on your prognosis, by providing virtual access to neurologists, genetic testing, insurance navigation, care coordination and mental health support.

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