In July 2022, the National Plan to End Parkinson’s Act, the first legislation dedicated to ending Parkinson's disease (PD) was introduced to the US House of Representatives. The goal is to unify the federal government and the private sector to significantly increase federal research funding for PD. It will create an advisory council comprised of federal and nonfederal stakeholders to help Health and Human Services make recommendations regarding research and care of those with PD. This will help accelerate work dedicated to earlier diagnosis, treatments, prevention and a cure for not only PD but related disorders such as Lewy Body Dementia, Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD), as well. It also aims to reduce the financial and health burdens on those living with and caring for people with PD. This could help spark new and improved models for patient care such as those offered at Synapticure, allowing us to better address health disparities in access to care including diagnosis, treatment, and participation in clinical trials for those who are traditionally underrepresented in the PD care landscape. This plan was reintroduced to the House and Senate on March 29th, 2023, just in time for Parkinson’s Awareness Month! Both chambers will need to review and pass the bill before it can go to the President for approval. This is a bipartisan effort sponsored by Senator Chris Murphy (D-CT)and Representatives Paul Tonko (D-NY) and thus far, the list of additional supporting senators and representatives continues to grow.
We, at Synapticure, are asking you to support the National Plan to End Parkinson’s (H.R.8585/S.4851) by contacting your representatives and telling them how important this is to our community! Here is an EASY way to advocate. Go to this website, sponsored by the Michael J Fox Foundation, and fill in your information. This will generate letters to go to your Senators and Representatives. You can send them as is or edit each one to add personal details. Together we can push this bill into law.